CDC is working with a network of Diamond Blackfan Anemia (DBA) clinical resource centers to advance research and improve the quality of life of people with DBA. At these centers, specialists from many fields work closely with local health care providers to meet patients’ individual needs. The clinical resource center network aims to:
Gather important health information about people with DBA by encouraging patients to enroll in the Diamond Blackfan Anemia Registry. This information will help support research on the genetics, treatment, and the way DBA effects people with this condition.
CDC’s work with DBA is intended to improve surveillance, outreach, and treatment for DBA, and learn whether we can use similar strategies for other rare diseases. For example: