Government Advocacy
David, Marie, Senator Clinton and Congresswoman Carolyn McCarthy
DBA Government Advocacy and Public Awareness Campaign
DMAF also coordinates the DBA Government Advocacy and Public Awareness campaign that works to educate Members of Congress and the federal agencies to understand the value of DBA research. The DBA Advocacy efforts, which were aided early on by a successful grassroots campaign from many DBA families across the country, have led to tremendous Congressional and Federal support that the entire DBA community can be proud of.
Be an Advocate for DBA Research!
Learn how to write to your Member of Congress
The National Institutes of Health (NIH) has now funded over $25M through the National Heart Lung Blood Institute’s (NHLBI) research grant dedicated to the study of DBA and related bone marrow failure research.
The Center for Disease Control and Prevention (CDC) budget includes nearly $500,000 annually to fund the DBA Public Outreach Program, which has established four DBA Centers across the country.
The U.S. House of Representatives passed House Resolution 524, the DBA Bill, on October 15, 2007. This resolution recognized the significant value in supporting advanced DBA research and the broad benefits to understanding DBA’s links to other, more prevalent disease groups affecting Americans. H.Res. 524 noted that a primary example of the benefit of DBA research is the recent discovery that the ribosomal deficiency problem in DBA is linked to myelodysplastic syndrome (MDS), which has greatly expanded the understanding of DBA and opened up a new, exciting direction to this field of scientific research.
- DBA bill- House Resolution 524
- List of Congressional Co-Sponsors
- Congressional/Government letters of support (Hillary, McCarthy and Specter)
- DBA Excerpts from June 2008 Fiscal Year 2009 Senate Appropriations Committee Report
- Text of Full Fiscal Year 2009 Senate Appropriations Committee Report
- THE HILL, OP-ED by Congresswoman Carolyn McCarthy, September 24, 2008
David and Senator Specter
Manny, Marie, Vic Hadfield with Former Congressman Jack Quinn, R-NY
David, Manny, Marie and Vic Hadfield in front of the U.S. Capitol Building