Several years ago, I was introduced to a brave woman named Marie Arturi. Marie came to me because her daughter had recently fallen victim to an exceptionally rare bone marrow failure disorder called Diamond Blackfan Anemia (DBA). She wanted people to know about the existence of the disease and the devastation it has caused to her family, amongst only a scattered handful of others. There currently is no cure for DBA other than stem cell (bone marrow) transplantation, and the treatments have limitations.

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